Sage Bionetworks

Sage Bionetworks is a nonprofit research organization focused on advancing biomedical discovery through open science principles and collaborative data sharing. The organization operates Synapse, a flagship data platform that manages approximately 3 petabytes of biomedical data and provides researchers with tools for secure data storage, ethical sharing, and AI-enabled analysis.

The organization specializes in creating data infrastructure for complex disease research, including Alzheimer's, Parkinson's, cancer, and rare diseases like neurofibromatosis. Their work spans digital biomarker development, clinical prediction models, and ethical frameworks for health data governance. Sage has launched multiple disease-specific knowledge portals and coordinates large-scale research initiatives, including a coordination center with the National Cancer Institute for the cancer biology community.

Sage Bionetworks has developed innovative approaches to research acceleration, including OpenChallenges.io for citizen science competitions and continuous algorithm benchmarking systems for diagnostic development. Their research teams focus on translating wearable sensor data into actionable digital biomarkers and developing frameworks for cybersecurity informed consent for connected medical devices.

Choose Sage Bionetworks when you need to participate in or establish large-scale collaborative biomedical research initiatives requiring robust data governance. The organization excels at creating data ecosystems for complex, multi-stakeholder research projects where open science principles and ethical data sharing are paramount.

Expect deep expertise in building disease-specific research communities and knowledge portals. Their approach combines technical data platform capabilities with strong frameworks for ethical governance, making them particularly valuable for research initiatives involving sensitive health data, rare diseases, or novel diagnostic development.

Sage Bionetworks serves the biomedical research community with specialized focus on disease-specific data ecosystems. Their healthcare work spans Alzheimer's disease, Parkinson's disease, various cancers, rare diseases like neurofibromatosis, and emerging areas like digital biomarkers from wearable devices. The organization maintains multiple disease-specific portals including the NF Data Portal, Agora for Alzheimer's research, and coordination centers for cancer biology.

Their healthcare expertise extends to ethical frameworks for connected medical devices, cybersecurity informed consent, and governance models for sensitive health data. They work extensively with the National Cancer Institute and other major healthcare research funders to establish best practices for open biomedical data sharing.

Research-intensive pharmaceutical companies, biotechnology firms, academic medical centers, and disease foundations conducting multi-institutional studies requiring data sharing infrastructure. Organizations developing novel therapeutics or diagnostics for rare diseases, neurodegenerative conditions, or cancer where collaborative data ecosystems can accelerate discovery timelines.